Stuent council backs 5th grader's plea to back Rett Syndrome research


Make text smaller Make text larger





Hilltop Country Day School believes that leading is an action verb. From the monthly community service projects to food and toy drives around the holidays, Hilltop has been serving its neighbors for decades. Central to Hilltop’s mission is the notion of giving back and developing leaders who will think globally, but act locally. The 2018-2019 school year is no different.

Last year Hilltop’s Student Council introduced “Dress Down Fridays” as a way to build school spirit, dress comfortably, and to benefit a local non-profit. Hilltop raised over $5,000 for the March of Dimes during the 2017-2018 school year thanks to this weekly initiative. Student Council President Charlotte Mignone just announced that Hilltop’s funds this year will go to support research for Rett Syndrome, a rare non-inherited genetic postnatal neurological disorder that occurs almost exclusively in girls. Rett leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily.

The Student Council voted to support this cause unanimously due, in large part, to the Easton family, a current Hilltop family. Sammy Easton, a Hilltop 5th grader, has been personally impacted by Rett Syndrome because his younger sister was diagnosed at a young age. Sammy has become an incredible advocate for Rett Syndrome research and is, frankly, a wonderful older brother.

Liz Easton, Sammy’s mother, notes, “We are so incredibly grateful to Hilltop Country Day School for choosing to support the Rett Syndrome Research Trust (RSRT) this year. Our daughter, Josephine (everyone calls her Fifi), suffers from Rett Syndrome, which is a devastating neurological disorder that affects 350,000 girls and women worldwide. Fifi, who is 8 years old, can no longer speak or walk independently or use her hands the way she wants, but her happy, sweet personality and infectious giggle charm everyone she meets.”

Perhaps most important is that experts indicate that a cure is within reach. Rett Syndrome has been reversed in lab mice, and scientists believe it can be cured in humans, too. President Mignone hopes that these funds will inch researchers just a bit closer towards finding that cure.

Hilltop Country Day School is Sussex County’s only independent school serving students in grades Preschool through 8. Hilltop’s focus on project-based pedagogical approach allows students to see the real world relevance of their education. Hilltop Country Day School provides the strong foundations necessary for inspired futures.



Make text smaller Make text larger

Comments

Pool Rules



MUST READ NEWS

Wallkill coach reflects on senior captains
A coach or athlete who has participated in a given sport for a sustained period of time can likely verify that there are very few...
Read more »
Image

Hamburg woman faces police assault charges
A Hamburg woman is facing charges when she allegedly assaulted a police officer to prevent being arrested.
Jordana M.

Read more »
Image

Franklin students celebrate 100 days of school
The kindergarten students at Franklin Borough School eagerly awaited the 100th day of school.
Both classes had fun practicing counting and using the design process to build...

Read more »
Image

Church to host military family nights program
St. Francis de Sales will host a Military Family Nights program beginning on March 6 at 5:30 p.m., sponsored by the Center for...
Read more »

VIDEOS



Subscribe to our mailing list

* indicates required
Community Newspapers



MOST READ

Entertainment
Lion King musical coming to Newton
  • Feb 14, 2019
Police & Fire
Police: Wantage woman made bomb threats
  • Feb 12, 2019
Entertainment
Newt to host free community event
  • Feb 14, 2019

MOST COMMENTED



Weather in Lafayette, NJ